Carson Martinez: Health Data Privacy 101 (Ep. 134)

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Carson Martinez: Health Data Privacy 101 (Ep. 134)

The Future of Privacy Forum’s Carson Martinez joined Joe Miller to discuss the health data privacy landscape and its relationship to HIPAA.


Carson Martinez (@CarsonMart) is the Future of Privacy Forum’s Health Policy Fellow. Carson works on issues surrounding health data, particularly where it is not covered by the Health Insurance Portability and Accountability Act (HIPAA). These non-HIPAA health data issues include consumer-facing genetics companies, wearables, medical “big data”, and medical device surveillance. Carson also assists with the operation of the Genetics Working Group. Carson was previously an Intern at Intel with the Government and Policy Group, working on health, technology, and policy. Before joining Intel, she was an intern for the International Neuroethics Society, and a Research Assistant for both the Data-Pop Alliance and New York University.

Carson graduated from Duke University with a Master’s Degree in Bioethics and Science Policy with a concentration in Technology and Data Policy. She earned her Bachelor’s Degree in Neuroscience with minors in Philosophy and Psychology from New York University. Carson is also a Certified Information Privacy Professional/United States (CIPP/US).


Future of Privacy Forum

When Breath Becomes Air by Paul Kalanithi

News Roundup

Trump considers re-joining the Trans-Pacific Partnership

Erica Werner, Damian Paletta and Seung Min Kim reported for the Washington Post that President Trump has ordered officials to look into the possibility of re-joining the Trans-Pacific Partnership –that’s the trade partnership between eleven nations, including Japan, Vietnam and Singapore. The Obama administration had signed the agreement, and Mexico and Canada are participating. But Trump backed out. Now he wants back in, presumably to gain negotiating leverage against China.

U.S./UK Accuse Russians of hacking home routers

There are fresh allegations today from British and American officials regarding Russia’s spying program. Apparently, Russians may have hacked routers belonging to small businesses and home offices. British intelligence, the National Security Council, DHS and the FBI made the announcement saying they had “high confidence” that Russia led cyberattacks into internet service providers, network routers, government and critical infrastructure. You can find the report in Forbes.

FCC’s Pai won’t investigate Sinclair

Remember the viral video from a few weeks ago in which news anchors on Sinclair TV stations around the country were reading the exact same script? Well, despite the request from 11 Democratic Senators plus Bernie Sanders, who is an Independent, to investigate Sinclair for distorting new coverage, FCC Chairman Ajit Pai has declined. He cites the First Amendment. The FCC’s inspector general is currently investigating Pai for improperly paving the way for Sinclair’s acquisition of Tribune Media.  Brett Samuels reports in The Hill.

Apple warns employees about leaking

Mark Gurman reports in Bloomberg on a leaked memo from inside Apple to employees warning them about leaks. The company threatened legal action and criminal charges and indicated that it caught 29 leakers last year, 12 of which were arrested.

New paper finds women find chilly environment in tech companies

A new paper out of the Clayman Institute for Gender Research and Stanford University finds that more women are earning STEM degrees. But they are finding the tech companies in which they find jobs to be stifling environments. Contributing to the chilly environments women technologists often find themselves in are the overt usage of gender stereotypes, an exclusive “geek” culture and other factors that discourage some women from advancing in tech.